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Carter / Levetown / Friebert

Palliative Care for Infants, Children, and Adolescents

A Practical Handbook

Medium: Buch
ISBN: 978-1-4214-0149-2
Verlag: American Academy of Hospice and Palliative Medicine
Erscheinungstermin: 15.10.2011
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There are few things requiring more expertise, delicacy, and compassion than caring for an infant, child, or young adult with a life-limiting condition. Written by leading researchers, clinicians from relevant disciplines, family members, and advocates, this practical guide provides professionals involved in pediatric palliative and end-of-life care with comprehensive information in a single volume.

Thoroughly updated and expanded, this edition includes chapters addressing the unique challenges facing children with HIV/AIDS and their families, care in home and ICU settings, difficult decision-making processes, and the importance of communication with the child and family, as well as completely new chapters on spiritual dimensions of care and educational and advocacy initiatives. Intended for primary care physicians, pediatric practitioners and specialists, home care and hospice personnel, pastoral counselors, and affected families, the book includes useful resource and reference material and practical, hands-on tips.

With contributions from an international group of expert educators, clinicians, and parents, this book takes a truly interdisciplinary approach to pediatric palliative care, presenting best practices, clear instruction, and the latest information and research for anyone involved in pediatric palliative and end-of-life care.

Produkteigenschaften

  • Artikelnummer: 9781421401492
  • Medium: Buch
  • ISBN: 978-1-4214-0149-2
  • Verlag: American Academy of Hospice and Palliative Medicine
  • Erscheinungstermin: 15.10.2011
  • Sprache(n): Englisch
  • Auflage: 2. Auflage 2011
  • Produktform: Kartoniert
  • Gewicht: 745 g
  • Seiten: 560
  • Format (B x H x T): 154 x 236 x 38 mm
  • Ausgabetyp: Kein, Unbekannt

Themen

Autoren/Hrsg.

Herausgeber

Brian S. Carter, M.D., is a professor in the Department of Pediatrics, Division of Neonatology, at Vanderbilt University Medical Center.

Marcia Levetown, M.D., is Principal, HealthCare Communication Associates in Houston, past chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine, and a Soros Faculty Scholar Alumna of the Project on Death in America.

Sarah E. Friebert, M.D., is Director of Palliative Care at Akron Children’s Hospital, associate professor of pediatrics at Northeast Ohio Universities Colleges of Medicine and Pharmacy, and chair of the American Academy of Pediatrics' Section on Hospice and Palliative Medicine.

List of Contributors

Preface

Part I: Societal and Institutional Issues
Chapter 1. Epidemiology and Health Services Research

Chapter 2. Goals, Values, and Confl ict Resolution

Chapter 3. Barriers to Integrating Palliative Care and Potential Solutions

Chapter 4. Educational Initiatives

Chapter 5. The Art of Advocacy

Part II: The Cycle of Care
Chapter 6. Decision Making

Chapter 7. Communication Skills and Relational Abilities

Chapter 8. Psychosocial Needs of the Child and Family

Chapter 9. Spiritual Dimensions

Chapter 10. Holistic Management of Symptoms

Chapter 11. Bereavement

Chapter 12. The Other Side of Caring: Caregiver Suffering

Part III: Special Care Environments and Patient Populations
Chapter 13. Palliative Care in the Neonatal-Perinatal Period

Chapter 14. Palliative Care in the Pediatric Intensive Care Setting

Chapter 15. Palliative Care in the Home, School, and Community

Chapter 16. Palliative Care for the Child Who Has a Genetic Condition
Chapter 17. Integrating Palliative Care with HIV Care and Treatment
Chapter 18. Integrating Palliative Care with Pediatric Hematology/Oncology

Index